Get a Grip!

In occupational therapy, much of our success hinges on our patients’ desire to work hard and succeed. After all, we can do everything in our power to help someone live a higher quality life, but at the end of the day, he or she HAS to be willing to do the work. Working with Kennedy Krieger’s Constraint-induced and Bimanual Therapy program, every day I watch kids work exhaustively to gain function in a limb that, until that point, they’ve been unable to use.

It helps when a patient has a goal, something that he’s passionate about, something that makes the struggle worthwhile. Well, Taylor Wilkerson has more passion for golf than any kid I’ve ever met—and probably most adults. But, having been diagnosed with cerebral palsy when he was 6 months old, he also had hemiparesis (muscle weakness on only one side of the body) in his left arm.

From the very beginning, what was so impressive about Taylor was that he was already excelling at the game as part of his school’s golf team in North Carolina. By his parents’ account, he already had a pretty powerful swing, but, because of his condition, his grip in his left hand was weak. So they brought him here to Kennedy Krieger for constraint-induced therapy.

Whether from an accident or a hemiparesis caused by a condition like cerebral palsy (such as in Taylor’s case), many of these kids have spent years adapting and learning to navigate the world around them by using just one hand. In constraint-induced therapy, our goal is simple: Teach these kids the potential that the less functional limb has by shifting their attention away from their dominant, stronger hand.

For patients who’ve grown used to relying on one arm, the experience can be extremely frustrating at first, especially during the first days of therapy. Not only are they being forced to use an arm they’ve considered less powerful and effective, but their good arm has been placed in a cast. It can be hard to keep going and tempting to give up.

That’s when all that passion I was talking about earlier becomes crucial, and for Taylor, it proved instrumental in his success.

This 13-year-old worked, and he worked hard. Of course there was frustration—he’d been relying on his good arm for even longer than patients who come to us five or six years younger. But he really, really wanted to improve his game. And he did.

Knowing how much he loved golf, we tried to incorporate the game into his therapy as much as possible, such as going outside to put golf tees in the ground and using Nintendo Wii golf and sports games to help him practice his swing. By the time his therapy was over, he was beating me on a regular basis—and doing it with his weaker hand. Better still, we were able to arrange for a local golf pro to visit and help Taylor with his swing. (Check out video from that fun day here.) He did amazingly well, and she was more than impressed with his young ability, especially given his disability. She enhanced our therapy by giving us drills to practice with two hands that Taylor could take back home to his teammates.

Kids like Taylor are the reason occupational therapists exist and why I love my job. This young man wanted something that the rest of us often take for granted—the use of both hands. And he worked hard to get it. As he continues his golfing into high school and through life, I have no doubt he will only grow better—and that he’ll do it with a good grip and both hands.

Teressa G. Reidy, MS, OTR/L, is an occupational therapist with Kennedy Krieger’s Constraint-induced and Bimanual Therapy Program.

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3 Responses to Get a Grip!

  1. Katherine Wilkerson says:

    Hi, Taylor’s mom here! I just wanted to take a moment to thank everyone at KKI for the amazing work that they do. Teressa was Taylor’s primary therapist and she had her hands full at times with him! However, their hard work paid off. Taylor was selected to be on his Middle School golf team again this year (as an 8th grader) and he is proving to be one of the team leaders. His time at KKI, short tho it was, taught him not only how to better use his hand, but patience! He doesn’t become as frustrated nearly as often as before and when he does, he takes a step back, a deep breath, and starts again.

    Thanks so much to everyone at Kennedy Krieger Institute. You do amazing work. Your dedication, compassion, determination, and drive is conveyed to your patients in a most positive way. Keep up the good work!

    • Teressa G. Reidy says:

      Ms. Wilkerson,
      Thank you so much for the update on Taylor, it is so great to hear about his continued success. Best of luck to Taylor on the golf team this year.

  2. Yes truly an inspirational story. One of courage and determination.

    It’s lovely to see that Taylor had the passion and drive to fulfill something he believed in, even though he knew it was going to be harder because he deals with CP. Whatever that dream is and however hard that dream will be, Taylor has proved through the odds, it can be done.

    Well done.

    http://www.thecpdiary.com

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